Hadassah

15 Russian Children with Fatal Bone Disease Healed at Hadassah

Tuesday, May 3 2016

Children from the Northern Russian Republic of Chuvash, who have the rare and fatal “marble bone disease” called osteopetrosis, are coming to Israel to be healed in the Hadassah Medical Center’s Pediatric Hematology Department.

A genetic disease that afflicts children, osteopetrosis results when the normal bodily process of building new bones and gradually tearing down old ones is faulty and the bones, rather than being porous, turn solid, like marble. In Chuvash, one of every 4,000 newborns is reportedly born with this condition.

“The doctors at home were able to diagnose the disease when he was a toddler,” relates Svetlana Izozsimova about her grandson, Kirill. “But there was no treatment. They told us Kirill would die, regretfully a terrible death.”

Read about how Svetlana found Hadassah, Kirill’s life-saving treatment at the hands of Bone Marrow Transplant expert Dr. Polina Stepensky, and the other 14 children who made the pilgrimage to Hadassah’s specialist for a new lease on life.

Comments

No comments yet.
First Name
Email
Comment
Enter this word:

Related Stories

alt_text

Thursday, Feb 7 2019

Six Miscarriages, a Severe Liver Disease, and a Dream

Oshrat Ohana Nagar was a busy newspaper journalist, a self-proclaimed workaholic, and a mother of two children. Shortly after the birth of her second child, however, she began to experience pain throughout her body.

READ MORE ›
alt_text

Wednesday, Feb 6 2019

Hadassah Hematologist Dina Ben-Yehuda: Healer, Researcher, Mentor, and Dean

During this age of big data and artificial intelligence, Prof. Dina Ben-Yehuda, head of the Hadassah Medical Organization’s Department of Hematology and now also the first female dean of the Hadassah-Hebrew University School of Medicine, believes that the “role of physician as healer is more necessary for patients than ever.”

READ MORE ›
alt_text

Wednesday, Feb 6 2019

Hadassah Eye Specialists Take Their Expertise to Nursing Homes

Saving nursing home residents from the burden of commuting to the hospital for eye examinations, Hadassah Medical Organization ophthalmologists and optometrists have begun bringing their expertise to the seniors’ home setting.

READ MORE ›
alt_text

Monday, Feb 4 2019

Hadassah Breast Imaging Specialist Offers Perspective on Preventive Care

The most important adversary to breast cancer screening is fear, says Dr. Tamar Sella, head of the Marlene Greenebaum Multidisciplinary Diagnostic Breast Center at the Hadassah Medical Organization.

READ MORE ›

Donation Questions

donorservices@hadassah.org

(800) 928-0685

Membership Questions

membership@hadassah.org

(800) 664-5646

Missions Department

missions@hadassah.org

(800) 237-1517

Contact Us

40 Wall Street

New York, NY 10005

support@hadassah.org

More ›

Show More