Hadassah

15 Russian Children with Fatal Bone Disease Healed at Hadassah

Tuesday, May 3 2016

Children from the Northern Russian Republic of Chuvash, who have the rare and fatal “marble bone disease” called osteopetrosis, are coming to Israel to be healed in the Hadassah Medical Center’s Pediatric Hematology Department.

A genetic disease that afflicts children, osteopetrosis results when the normal bodily process of building new bones and gradually tearing down old ones is faulty and the bones, rather than being porous, turn solid, like marble. In Chuvash, one of every 4,000 newborns is reportedly born with this condition.

“The doctors at home were able to diagnose the disease when he was a toddler,” relates Svetlana Izozsimova about her grandson, Kirill. “But there was no treatment. They told us Kirill would die, regretfully a terrible death.”

Read about how Svetlana found Hadassah, Kirill’s life-saving treatment at the hands of Bone Marrow Transplant expert Dr. Polina Stepensky, and the other 14 children who made the pilgrimage to Hadassah’s specialist for a new lease on life.

Comments

No comments yet.
First Name
Email
Comment
Enter this word:

Related Stories

alt_text

Wednesday, Aug 16 2017

Gazan Boy Walks for First Time at Hadassah

Unable to stand on his feet, suffering from severe respiratory distress, a four-year-old boy from Gaza gained the ability to walk once Hadassah Hospital surgeons identified and removed a large tumor lodged in his chest.

READ MORE ›
alt_text

Wednesday, Aug 16 2017

Hadassah Hosts Health Innovation Conference

Over one hundred doctors, researchers, and entrepreneurs gathered at Hadassah Hospital Ein Kerem this summer to discuss how to advance the quality of patient care with computational power.

READ MORE ›
alt_text

Monday, Aug 14 2017

Hadassah Hosts First Human Trial with Drug to Fight Nasty Bacterial Infection

Immuron, an Australian biopharmaceutical company, has received approval from the Hadassah Medical Organization’s ethics committee and Israel’s Ministry of Health to begin its first clinical trial with a new drug to fight a bacterial infection called Clostridium Difficile (CDI).

READ MORE ›
alt_text

Thursday, Aug 3 2017

Mystery of Devastating Pediatric Disease Solved by Hadassah Team

A genetic mutation causing a rare and devastating pediatric neurological disease that has puzzled medical centers around the world has been identified at the Hadassah Medical Organization by Prof. Orly Elpeleg, head of Hadassah's Department of Genetics and Metabolic Diseases.

READ MORE ›

Donation Questions

donorservices@hadassah.org

(800) 928-0685

Membership Questions

membership@hadassah.org

(800) 664-5646

Missions Department

missions@hadassah.org

(800) 237-1517

Contact Us

40 Wall Street

New York, NY 10005

support@hadassah.org

More ›

Show More