Hadassah

Russian Children Travel to Hadassah to be Treated For a Rare Disease

Wednesday, Oct 5 2016

Dr. Polina Stepensky saves Russian children

Children from the Northern Russian Republic of Chuvash, with the rare and fatal genetic disease called “marble bone disease” or osteopetrosis, are coming to Israel to be healed in the Hadassah Medical Center’s Pediatric Hematology Department.

Svetlana Izozsimova’s grandson, Kirill was dying. The toddler had been diagnosed with osteopetrosis in 2012. She was told that he would lose his eyesight and hearing and his head would become misshapen. The doctors in Russia could not offer any treatment and told Svetlana that the disease would cause a “terrible death.”

Svetlana, a cleaning lady from Cheboksary, a city of 400,000 people in the Volga Upland in the far reaches of Northern Russia, was not willing to give up. She loved her grandson too much. She went on-line, and found that Hadassah was treating osteopetrosis in Arab children from Hebron. She wrote to Dr. Polina Stepensky at the Hadassah Medical Center’s Pediatric Hematology Department in Russian and was very surprised to receive a letter back immediately in Russian. It turned out that Dr. Stepensky had immigrated to Israel from the former Soviet Union and the language was no problem!

Svetlana raised the money to take Kirill to Hadassah. They would have to stay for a year. Kirill was already blind, but a bone marrow transplant might return his head to a normal shape and save his life. Kirill was treated by Dr. Stepensky, and he was doing very well after a bone marrow transplant.

The news spread back home. It turns out that one of every 4,000 newborns in Russia has the genetic mutation that causes osteopetrosis. Other families wanted to take their children to Hadassah to be treated before it was too late. Fundraising on a local TV station raised enough money to send children to Hadassah for treatment.

To date, Hadassah has treated another 14 Russian children, saving their sight and hearing and offering them the opportunity to grow up and live normal lives.

This is a story that ends well. Now five years old, Kirill recently returned to Hadassah for his two- year checkup and has a wonderful prognosis. Svetlana and the whole family are thrilled.

Read an article in the Jerusalem Post about Hadassah’s work with Russian Children

Meet Dr. Stepensky and hear about the children she has saved.

Comments

No comments yet.
First Name
Email
Comment
Enter this word:

Related Stories

alt_text

Thursday, Feb 7 2019

Six Miscarriages, a Severe Liver Disease, and a Dream

Oshrat Ohana Nagar was a busy newspaper journalist, a self-proclaimed workaholic, and a mother of two children. Shortly after the birth of her second child, however, she began to experience pain throughout her body.

READ MORE ›
alt_text

Wednesday, Feb 6 2019

Hadassah Hematologist Dina Ben-Yehuda: Healer, Researcher, Mentor, and Dean

During this age of big data and artificial intelligence, Prof. Dina Ben-Yehuda, head of the Hadassah Medical Organization’s Department of Hematology and now also the first female dean of the Hadassah-Hebrew University School of Medicine, believes that the “role of physician as healer is more necessary for patients than ever.”

READ MORE ›
alt_text

Wednesday, Feb 6 2019

Hadassah Eye Specialists Take Their Expertise to Nursing Homes

Saving nursing home residents from the burden of commuting to the hospital for eye examinations, Hadassah Medical Organization ophthalmologists and optometrists have begun bringing their expertise to the seniors’ home setting.

READ MORE ›
alt_text

Monday, Feb 4 2019

Hadassah Breast Imaging Specialist Offers Perspective on Preventive Care

The most important adversary to breast cancer screening is fear, says Dr. Tamar Sella, head of the Marlene Greenebaum Multidisciplinary Diagnostic Breast Center at the Hadassah Medical Organization.

READ MORE ›

Donation Questions

donorservices@hadassah.org

(800) 928-0685

Membership Questions

membership@hadassah.org

(800) 664-5646

Missions Department

missions@hadassah.org

(800) 237-1517

Contact Us

40 Wall Street

New York, NY 10005

support@hadassah.org

More ›

Show More