Thanks to on-going treatment provided by Prof. Eitan Kerem, head of Pediatrics and the Cystic Fibrosis Center at the Hadassah Medical Center, Shefa Shukrun, who suffers from cystic fibrosis, was able to celebrate her Bat Mitzvah in Jerusalem this summer.
Both Shefa and her 10-year-old brother, Yam, suffer from this life-threatening genetic lung disorder. They had been living in New Zealand but the family moved to Israel in 2007 to put the children under Prof. Kerem’s care. Both children get to school quite regularly now and participate in extra-curricular activities. Shefa is a member of the local gymnastics team and her younger brother plays the drums and keyboard.
For the Shukrun family of Moshav Yinon, August began with one daughter competing in the summer Olympic Games. It draws to a close with a second daughter celebrating the bat mitzvah many feared she would not live to achieve. In gratitude, the family asked Prof. Kerem to deliver opening blessings at the bat mitzvah.
"You can say that we've been through the entire spectrum,” Shuki Shukrun, their father, relates--“the victory of basic survival and the victory of reaching the skies." Mr. Shukrun’s other daughter, Jo Aleh, won a gold medal for New Zealand, sailing in the women's 470 regatta.
Read the story in Haaretz here