Hadassah

Hadassah Physician Advocates Successfully for Insurance Coverage of Medicine to Save Infant

Monday, Jan 30 2017

Prof. Shimon Reif, head of the Department of Pediatrics at Hadassah Hospital Ein Kerem.

Prof. Shimon Reif, head of the Department of Pediatrics at Hadassah Hospital Ein Kerem, successfully advocated for health insurance coverage of a medicine that a two-month-old baby with a rare metabolic disease needed to survive.

The baby’s genetic condition leads to her inability to metabolize fats. As Prof. Reif recently explained on Israeli radio, orphan diseases like this rarely have cures and when they do, the costs are very high because the medicine will only be needed for a small number of patients. The cost of this enzyme therapy called Kanuma is half a million shekels a year.

Appearing in the first weeks of life, the disease, called lysosomal acid lipase deficiency, impacts all bodily systems. The child experiences digestive and liver problems and fails to grow and is expected to live only a few months without the medication.

The Jerusalem baby's two older sisters, who were born with the same disease, both died. "This baby was brought to us when she was two months old," relates Prof. Reif. "Because of the terrible family history, we immediately did genetic testing."

Although the health basket committee had discussed approval of this medicine in October, at the time, there were no cases in Israel. “We thank God for the decision,” said the baby’s father. “We hope our daughter will now be able to grow and develop."

Related Stories

alt_text

Thursday, Jul 2 2020

Leading a COVID-19-Free Hospital–a Vision Beyond the Virus at Hadassah

In the midst of the COVID-19 pandemic, Dr. Tamar Elram, director of Hadassah Hospital Mount Scopus, has been in the very unusual situation of running a large hospital...

READ MORE ›
alt_text

Wednesday, Jul 1 2020

Hadassah Colloquium Assesses Where We Are Headed With COVID-19

As frightening numbers of new COVID-19 cases plague Israel, Prof. Allon Moses, international infectious disease expert and immediate past director of the Hadassah Medical...

READ MORE ›
alt_text

Monday, Jun 29 2020

First Commercial Antibody Serum Given at Hadassah to COVID-19 Patient

The Hadassah Medical Organization worked with an ultra-Orthodox communal organization to collect antibody-rich plasma from recovered COVID-19 patients...

READ MORE ›
alt_text

Monday, Jun 29 2020

COVID-19 Nursing Care Leads to Collaborative Research by Hadassah Nurses

With a little distance from the first phase of the COVID-19 pandemic, Hadassah Medical Organization nurse educator and critical care specialist Julie Benbenishty...

READ MORE ›

Donation Questions

donorservices@hadassah.org

(800) 928-0685

Membership Questions

membership@hadassah.org

(800) 664-5646

Israel Travel

israeltravel@hadassah.org

(800) 237-1517

Contact Us

40 Wall Street

New York, NY 10005

support@hadassah.org

More ›

Show More